The mission of Let's Face It is to provide information. We do not provide actual financial assistance. There are some organizations that provide financial resources for patients, although there are usually guidelines for type of services funded.
ORGANIZATIONS PROVIDING ASSISTANCE FOR CRANIOFACIAL PATIENTS
FACES: The National Craniofacial Association
P. O. Box 11082
Chattanooga, TN 37401
(800)332-2373
Email: [email protected]
Web: http://www.faces-cranio.org/
"We provide financial support for non-medical expenses to patients
traveling to a craniofacial center for treatment. Eligibility is based
on financial and medical need." "Please send me information about FACES'
financial assistance for traveling to our craniofacial center."
World Craniofacial Foundation
7777 Forest Lane, Ste C-621
P.O. Box 515838
Dallas, TX 75251-5838
972-566-6669
1-800-533-3315
fax 972-566-3850
email: [email protected]
web: http://www.worldcf.org/assistance.cfm
"If you are the parent or guardian of a child who is in need of medical treatment to correct birth-related or acquired deformities of the head and face, including trauma, degenerative diseases and tumors, and would like to receive an Application for Financial Assistance, you may contact the WCF."
ORGANIZATIONS PROVIDING ASSISTANCE OR FINANCIAL INFORMATION FOR CHILDREN WITH MEDICAL NEEDS
Disabled Children's Relief Fund
P.O. Box 89
Freeport, New York 11520
Phone: 516-377-1605
web: http://www.dcrf.com/index.html
"Disabled Children's Relief Fund (DCRF), a non-profit 501(c)(3) organization, provides disabled children with assistance to obtain wheelchairs, orthopedic braces, walkers, lifts, hearing aids, eyeglasses, medical equipment, physical therapy, and surgery."
SNAP (Special Needs Advocate for Parents)
(888)310-9889
email: [email protected]
web: http://www.snapinfo.org/home.html
"SNAP serves over 6,000 organizations and families in the special needs community with educational seminars on special needs estate planning, referrals, and networking opportunities as well as offering medical insurance problem-solving education and services."
Social Security Adminstration: Benefits For Children With Disabilities
SSA Publication No. 05-10026, January 2006, ICN 455360
web: http://www.ssa.gov/pubs/10026.html
The Sparrow Foundation
4192 NW 61st
Redmond OR 97756
(541) 549-1144 ext.8307
web: http://www.sparrowclubs.org/
STATE AND LOCAL PROGRAMS
It is sometimes more realistic to explore local resources. Your first line of information for these is your local health care team. We strongly encourage the family to enquire about financial support from their doctor, the social worker at the hospital, or the Patient Relations unit for their hospital. You may also be able to get some information from the Child Life unit of the hospital. Your doctor can help you contact these local units. Sometimes they require a referral from the doctor, so that is an even better reason to begin by talking with your clinician.
Another way to discover state and local organizations is to check with whatever is your local family support program. These may be at the state, county, or city/town level (or all of these). Here is some sources for finding these.
National Family Support Mapping Project
Family Support America
205 West Randolph Street, Suite 2222
Chicago, IL 60606
Tel: 312/338-0900
Fax: 312/338-1522
[email protected]
web: http://www.familysupportamerica.org/content/mapping_dir/find.asp
National Center for Family Support
Human Services Research Institute
7420 SW Bridgeport Rd., Suite #210
Portland, OR 97224
Voice: 503-924-3783
Fax: 503-927-3789
Email: [email protected]
web:http://www.familysupport-hsri.org/
Many other options depend on the family's income. Some options to consider exploring are:
Medicaid: http://www.cms.hhs.gov/home/medicaid.asp
State Children's Health Insurance Program (SCHIP): http://www.cms.hhs.gov/schip/
Types of care available could include:
- Family expenses (ask social worker)
- Patient care and treatment (insurance and SCHIP)
- Lodging during treatment (Ronald McDonald House)
- Transportation (Local service organizations often provide this)