Be sure to check out Genetic Alliance for more genetic information.

Chances' Choices
An inexpensive high school genetics curriculum designed around a hypothetical family with several genetic disorders.

Foundation for Blood Research
P.O. Box 190, 69 US Route One
Scarborough, ME 04070-0190
(800) 639-8605

Genetic and Rare Diseases Information Center
Established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD), the Genetic and Rare Diseases Information Center employs experienced information specialists to answer questions from the general public, including patients and their families, health care professionals, and biomedical researchers.

P.O. Box 8126
Gaithersburg, MD 20898-8126
(888) 205-2311 (M-F, 12 p.m. - 6 p.m. EST)
(888) 205-3223 TTY

Human Genome Project
A worldwide effort to map human genes and lead us to finding causes for disease and prevention information.

  • Informative web site
  • NHGRI Policy and Legislation Database - Free, searchable database.

Communications and Public Liaison Branch
National Human Genome Research Institute
National Institutes of Health
Bldg. 31, Rm., 4B09, 31 Center Dr., MSC 2152
9000 Rockville Pike
Bethesda, MD 20892-2152
(301) 402-0911

Starting and Sustaining Genetic Support Groups From the Kitchen Table to the Boardroom
A gem of a resource! Available at the Genetic Alliance web site.

More Resources