CLEFT LIP/PALATE


For professional information on cleft lip/palate, see The American Cleft Palate Craniofacial Association (ACPA).

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A Beautiful Child (video)
The video is presented as a message of hope and encouragement, and an introduction for parents who have just learned that their child has a cleft. This 25-minute video includes interviews of parents who discuss their experiences of first learning about and raising an infant born with a cleft lip and/or cleft palate, and includes the perspective of an adult who was born with a cleft lip.
With good humor and openness, parents describe how their perspective, understanding, and outlook changed as a result of caring for a child born with a cleft.

The video includes many photos of the children before and after their surgeries, and is divided into the following five chapters:

  • Finding Out
  • Concerns and Misconceptions
  • A New Baby
  • Early Surgeries
  • A New Perspective

A valuable part of all birthing centers.

Contact Paula Miller
(703) 426-9815
Web: http://www.virginia-smiles.org

Cleft Advocate
An online resource for patients and families dealing with cleft lip and palate. Founded by a parent, Debbie Oliver, who is truly "Tackling the Health Care and Insurance Issues that Concern You."

  • Family to family networking, articles, etc.
  • Parent conferences

P.O. Box 751112, Las Vegas, NV 89136-1112
(702) 769-9264
E-mail: [email protected]
Web: http://www.cleftadvocate.com

The Cleft Palate Story
A parent's guide, edited by Dr. Samuel Berkowitz. A primer for parents of children with cleft lip and palate. Answers to all the questions parents have.

Publisher: Singular Publishing Group

Face First (video)
An award-winning video documenting birth to adulthood of four people with facial disfigurement. Director, Mike Grundmann, was born with a cleft lip and palate and this video tells the stories with humor and depth. Call for pricing.

Fanlight Productions
P.O. Box 1084, Harriman, NY 10926
(800) 937-4113
Web: http://www.fanlight.com/catalog/films/259_ff.shtml

Director, Mike Grundmann
P.O. Box 26951
Santa Ana, CA 92799-6951
(949) 722-7720
E-mail: [email protected]
Web: http://www.mikegrundmann.com

A Parent's Guide to Cleft Lip and Palate
By Moller. One parent has said that this book should be required reading for every new parent of a child with a cleft lip or palate! 

Publisher: University of Chicago Press

Perspectives in Management with an Introduction to Craniofacial Anomalies
Text book. 

Publisher: Singular Publishing Group

Prescription Parents, Inc.
Network in New England for people with cleft lip and palate. Their web site offers practical, detailed information on all aspects of parenting a child with a cleft - breastfeeding, solid foods, hearing, behavior, etc. Top notch resource!

45 Brentwood Circle, Needham, MA 02492
(781) 431-1398
Web: http://www.samizdat.com/pp1.html

Rotary International Thousand Smiles Foundation
Rotary International performs free craniofacial surgery in Mexico and Costa Rica.

P.O. Box 606, Bonita, CA 91908-0606
(619) 470-2885
E-mail: [email protected]
Web: http://www.thousandsmiles.org/

Someone Like Me
A Booklet for Children Born with Cleft Lip and Palate
Michael Fisbaough has written a detailed, beautifully illustrated book about a child born with a cleft lip and palate. Welcome gift.

Diane Wachendorff
Face to Face of Indianapolis
506 Maxine Manor, Brownsburgh, IN 46112-1535
(317) 852-3676

Understanding Cleft Lip & Palate, A Guide for New Parents (video)
This FREE film is the best we have seen on this subject! The film documents the needs of all new parents who have a child born with a cleft lip/palate or any other facial disability that needs medical attention. Professional and parent insights are beautifully shared with the audience. We think it should be part of all medical education. All new parents can gain a depth of understanding about their own needs and the needs of their child. See Foundation for the Faces of Children for contact information.

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