BASAL CELL CARCINOMA NEVOID SYNDROME (BCCNS a.k.a. Gorlin Syndrome)
BCCNS Life Support Network
This U.S. network is dedicated to promote education, support, and early detection for this very complex syndrome. Their brochure lists over 21 serious medical conditions that challenge the diagnosis and treatment of BCCNS. Medical referrals, a newsletter, family and medical retreats, hospital staff education and team collaboration are all part of their work. We recommend their film Bitter Inheritance (1/2 hour) for anyone who wants to learn more about the syndrome.
Kristi Schmitt-Burr, Director
P.O. Box 321, Burton, OH 44021
(440) 635-0078
(866) 834-1895 - Toll Free Patient Line
E-mail: info@bccns.org
Web: http://www.bccns.org