SURGERY AND RECOVERY RESOURCES
|Prepare for Surgery, Heal Faster
By Peggy Huddelson. Detailed book with audio tape (or CD). One friend of Let's Face It, who has had over 60 facial surgeries, says she thinks all people should read this book whether they are having surgery or not!
Articles on recovery after major brain surgery
The Acoustic Neuroma Association March 2002 newsletter (Notes) has several articles that we found helpful and interesting. The newsletter reports how patients and professionals deal with common issues after major head and neck surgery: dry mouth, dry eyes, tinnitus, etc. The lead article, Facial Rehabilitation after Acoustic Neuroma Surgery, is written by OTR Facial Retraining Specialist H. Jacqueline Diels. This article alone could be useful for discharge planning for head and neck surgery patients. For free copies, contact the Acoustic Neuroma Association.
Broken Bodies, Healing Hearts
Reflections of a Hospital Chaplain
Gretchen W. TenBrooks' paperback book is a delight. Her actions and thoughts as she walks the halls of Johns Hopkins Hospital are fun, deep, and insightful. A wonderful gift for your favorite clergy person, social worker, or Child Life Specialist.
Publisher: Haworth Press Inc.
Chronic Illness and the Twelve Steps - A Practical Approach to Spiritual Resilience
Martha Cleveland gives us this clearly written guide to healing our lives. Highly recommended by many Let's Face It readers.
Publisher: Hazelden Press
Complex Craniofacial Problems - A Guide to Analysis and Treatment
By Dufresne, Carson, and Zinreich. Text book. Available through interlibrary loan or medical libraries.
Easy-to-Swallow, Easy-to-Chew Cookbook
Understanding swallowing is a complex subject and the authors give us 50 pages of easy to understand education on the subject! We welcome this important resource with over 150 recipes. At book stores.
John Wiley and Sons, 2002
Facing Facial Surgery? Cut Out the Caffeine
Finding the Joy In Today
Practical Readings for Living with Chronic Illness
By Sefra Kobrin Pitzelle. Down to earth daily readings for any adult living with chronic illness or even wellness with a chronic illness. Recently, several long- term head and neck surgery patients have called thanking us for suggesting this paperback book. A welcome gift.
Publisher: Hazelden Press
Frances Cooke Macgregor
The late Professor Macgregor's publications reflect her 40 years of in-depth, detailed research with people who have facial disfigurement. Her validation of the "brief encounter" and what it can do to mental health is one of her many contributions to our knowledge about living with facial difference.
Facial Disfigurement: Problems and Management of Social Interaction and Implications for Mental Health
Books by Professor Macgregor
The following two works are out of print, but many libraries have copies or can get you a copy:
For a complete bibliography of Professor Macgregor's work, send a SASE to Let's Face It (address at bottom of page).
Friends' Health Connection
A powerful network that links anyone with a medical problem to people and resources for that illness.
Roxanne Black, Director
P.O. Box 114
New Brunswick, NJ 08903
I Can't Get Over It, A Handbook for Trauma Survivors
By Aphrodite Matsakis, Ph.D. Many adults who had surgeries as infants and as adults have told us about the healing powers of this book. Surgery of the head and neck are traumatic events in our lives. The physical and medical symptoms of Post-Traumatic Stress disorders are explained and the reader is given specific tools for healing. Let us know if you find it helpful.
Publisher: New Harbinger Publications
Laurel's Kitchen Caring, Recipes for Everyday Home Caregiving
By Laurel Robertson. Many practical nurturing ways to care for an ill loved one.
Publisher: Ten Speed Press, 1997
Meeting the Challenge, Living with Chronic Illness
By Audry Kron. The public is singing praises for this 200-page paperback. It is full of down-to-earth, creative ways of dealing with the many parts of any chronic illness. We particularly enjoyed Ms. Krons' direct steps for dealing with pain.
Center for Coping with Chronic Illness
West Bloomfield, MI
My New Nose
In this article, Christine Lemmo, a woman born with a cleft lip and palate, frankly shares the dilemmas of deciding to have corrective surgery on her nose. This article, with its honesty and hope, is a gift to all adults who are contemplating facial surgery. AboutFace USA Winter/Spring 2002 Newsletter. You can read this article online at http://www.aboutfaceusa.org or http://www.cleftadvocate.com.
National Coalition Against Domestic Violence
This service is for survivors of domestic violence who have facial or neck disfigurement. The American Academy of Facial Plastic and Reconstructive Surgery will refer patients to its member surgeons who will perform free reconstructive surgery. There is a careful screening process. Recipients need to have been separated from their abusive intimate partners for one year.
Physicians' Guide to Rare Disorders - Second Edition
The Relaxation Response
By Herbert Benson, M.D.
Publisher: Avon, 1999
Wherever You Go There You Are
Dr. Jon Kabat-Zubb gives the reader skills for taking responsibility for their own health.
Publisher: Hyperion, NY, 1994
Your Body Believes Every Word You Say
Barbara Levine demonstrates and gives historical medical facts about our bodies reactions to our thoughts.
Publisher: Words Work Publishing