CANCER - Resources for Everyone
Books by Dr. Wendy Harpham
Dr. Harpham's books are the most thorough, patient-centered tools for dealing with cancer that we have found. Her long bout with cancer forced her to give up her medical practice, but we are all the winners because of her dedication to the clear, easy, practical education of patients, families, and professionals. She is a wife and the mother of three children. “Just what the doctor ordered,” or should order, is how we feel about these up-to-date books. Be sure you get the latest edition of each as they have been printed several times. Her web site is a good place to take a look at the contents of the books.
- Diagnosis Cancer - Your Guide to the First Months of Healthy Survivorship
- When A Parent Has Cancer - A Guide to Caring For Your Children (Becky and the Worry Cup, a book for children, is included.)
- After Cancer - A Guide to Your New Life
- The Hope Tree - Kids Talk About Breast Cancer - Co-authored with Laura Mumeroff and illustrated by one of our favorite illustrators, David McPhail.
- Happiness in a Storm - Be sure to take a look at this new book by Dr. Harpham that is due for release in September 2005.
P.O. Box 835574, Richardson, TX 75083-5574
Web: http://www.wendyharpham.com
| National Cancer Institute The hotline is available 9 a.m. - 4:30 p.m. in your time zone. They will answer or find the answers to all your questions. The NCI web page links health professionals and the public to their vast free publications and to CancerNet for clinical trial information, etc. A few of our favorites are:
Support for People with Oral and Head and Neck Cancer (SPOHNC)
SPOHNC has published “Eat Well and Stay Nourished, A Recipe and Resource Guide for Copying with Eating Challenges.” This book is not for those of us who need a liquid diet. Our reviewer appreciated the detailed, accurate nutritional information after each recipe. Wonderful gift. SPOHNC celebrates 15 years with its “Celebration of Life” conference August 19-20, 2006 in Long Island, NY. If you have dealt with or are dealing with facial cancer we urge you to attend this two day “Celebration of Life.”
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Adenoid Cystic Carcinoma Foundation (ADEN-CYST)
This nonprofit network provides support and information for this rare cancer.
Nancy Whitman, Co-Chair
Monroe, MI
Web: http://www.paonline.com/knippd/acc/
The Cancer Poetry Project: Poems by Cancer Patients and Those Who Love Them
Edited by Karen Miller. Nancy Sully has been dealing with a rare cancer of the jaw since 1979 and has had her jaw replaced twice. Nancy says that other than difficulties eating she is doing well right now, "though the future, as always, is uncertain."
As a cancer survivor and a poet whose submission to The Cancer Poetry Project was not accepted (!), I feel myself uniquely qualified to review this remarkable anthology. If you can lay hands on it, read it, learn, be moved by it. These wonderful poems are as different from each other as their authors, and as the ways cancer may impact our lives. But they share and unflinching honesty, a willingness to experience and explore the truth of the disease, and never descend into cliche or sentimentality. Anyone, cancer patient, those who love and care for them, poetry lover, or general reader with a willingness to enlarge their horizons would profit by reading The Cancer Poetry Project.(Reviewed by Nancy Sully.)
Publisher: Fairview Press
Choices in Healing, Integrating The Best of Conventional and Complementary Approaches to Cancer
Be sure to get the latest edition! Michael Lerner gives a detailed, comprehensive overview of available choices in cancer care. Paperback.
Publisher: MIT Press, Cambridge, MA
Clinical Trials
To find out about clinical trials going on all over the world, see the National Institute of Health web site.
Eating Well Through Cancer
By Gerald Miletello MD and Holly B. Clegg. An oncologist and a cookbook author team up to produce this welcome book that has nourishing solution for many unwelcome "side effects" of cancer treatment. Included in the book is everything from nutrition advice for the day of chemotherapy to delicious and clever ways to add protein laden and soft foods that sooth and nourish.
Publisher: Holly B. Clegg
Breast cancer survivors can get a free copy by going to http://www.livingwithit.org.
| Face Value - Coping with Facial Disfigurement In this paperback book, Linda Shafritz documents her and her family's life after she lost her eye to cancer. Very comforting book. For a free copy (while they last), write or e-mail Let's Face It (address at bottom of page). |
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The Healing Jaw
By Susan Beaudette RN. If you have had jaw or palate surgery yesterday or 30 years ago, this cookbook is a teaching tool for patients, parents, and professionals. From Susan's Zip-N-Squeeze eating device to her recipes our bodies can be nourished to better health. Some have said that one of the worst things about jaw surgery is constipation. Susan deals with the hidden health hazards that come with palate or jaw surgery. See Zip-N-Squeeze for contact and ordering information.
Publisher: Zip-N-Squeeze
The Human Side of Cancer, Living with Hope, Coping with Uncertainty
By Jimmie C. Holland, M.D. and Sheldon Lewis, Memorial-Sloan Cancer Center. This book can lead all of us dealing with cancer or any chronic illness to be the best care givers we can be.
Mercy Me! Cancer Prayers, Poems and Psalms
Mary L. Roark's delightful paperback book presents a faith perspective to persons who are or want to be close to their spirit world during cancer treatment and recovery. She wrote this little poem for us to use here:
Hair Today, Gone Tomorrow
Those who love me, love me
with or without hair
with or without energy,
with or without extra pounds,
with or without body parts,
The others do not matter. ©2002Publisher: Morgan Publishing Inc., Naples, FL
E-mail: RoarkMary@aol.com
National Coalition for Cancer Survivorship (NCCS)
- Books, meetings, advocacy
Ellen Sovall, Executive Director
1010 Wayne Ave., Ste. 770
Silver Spring, MD 20910
(301) 650-9127
(877) 622-7937 - Publications
E-mail: info@canceradvocacy.org
Web: http://www.canceradvocacy.org
Oral Cancer Foundation
Two important videos:
- What You Should Know About Oral Cancer - Hazards of Smokeless Tobacco (Education Program)
- Xerstomia - Dry Mouth - A video that teaches innovative ways to deal with this disability.
3419 Via Lido, #205
Newport Beach, CA 92663
(949) 646-8000
E-mail: info@oralcancerfoundation.org
Web: http://www.oralcancerfoundation.org/
Radiation Treatment and Your Mouth
Chemotherapy and Your Mouth
Oral Health, Cancer Care, and You - Fitting the Pieces Together
These pamphlets produced by the National Oral Health Information Clearinghouse should be part of every persons cancer care! Easy to read and so important to your life after treatment. See the National Oral Health Information Clearinghouse for contact and ordering information.
CANCER - Resources for Children and Families
Candlelighters Childhood Cancer Foundation
- Newsletters
- Books
P.O. Box 498, Kensington, MD 20895-0498
(800) 366-2223 - Parent Hotline
(301) 962-3520 - All other calls
E-mail: @candlelighters.org
Web: http://www.candlelighters.org
Childhood Cancer,
A Handbook from St. Jude Children's Research Hospital
Editors Grant Steen, Ph.D. and Joseph Mirro, MD. Professionals and families are singing the praises of this sensitive, detailed, (600-page!) well-written book. Questions are answered and medical details of all treatments are here for the reader. We think all libraries should have copies and that this would make a super gift to any family facing childhood cancer.
Publisher: Presses Publishing, 2000
Childhood Cancer Survivors
A book by Keene, Hobbie, and Ruccione. We welcome this detailed and well-presented book. The multiple short and long-term effects to the spirits, bodies, and minds of childhood cancer survivors and their families are all here. This book should spark creative, realistic, post treatment plans.
Publisher: O'Reilly & Associates, Inc.
The Hope Tree,
Kids Talk About Breast Cancer
By Laura Numeroff & Wendy S. Harpham, MD. Illustrations by David McPahil. A book for children about a parent's cancer does not get much better than this one! Each page with David McPahil's illustrations would make a super poster. The real issues of children (and all of us) are stated in their words and then illustrated by a McPahil "animal family." Thanks to the Susan G. Komen Breast Cancer Foundation for this important new hardcover book.
Publisher: Simon Schuster
Kids' Cancer Pages, National Childhood Cancer Resource Directory
Created by the Children's Cancer Association of Portland, Oregon. This directory covers all the issues - from where to begin your search for information to life after cancer.
Children's Cancer Association
7524 SW Macadam, Ste. B
Portland, OR 97219
(503) 244-3141
E-mail: office@e-cca.org
Web: http://www.ChildrensCancerAssociation.org
The Paper Chain
By Blake, Blanchard, Parkinson. This delightful children's book is written for the child age 3-10 whose parent is undergoing chemotherapy or radiation therapy.
Publisher: Health Press
PO Box 37470, Albuquerque, NM, 87176
(877) 411-0707
E-mail: goodbooks@healthpress.com
Web: http://www.healthpress.com
Sammy's Mommy Has Cancer
By Sherry Kohlenberg. Sharing this beautifully illustrated book, a family can experience a sense of safety and encouragement. Ages 2-8.
Publisher: Magination Press
What About Me?
A Booklet for Teenage Children of Cancer Patients
First copy free. Call for additional prices.
Cancer Family Care, Cincinnati, OH
(513) 731-3346
The Year My Mother Was Bald
By Ann Speltz.
Publisher: Magination Press
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- ACS :: Will I Have Eating Problems?
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- Oral Cancer Foundation 2007
- Oral Cancer Foundation 2007
- Genes and Disease. Table of Contents
- Genes and Disease. Table of Contents
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- ACS :: Will I Have Eating Problems?
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- Oral Cancer Foundation 2007
- Oral Cancer Foundation 2007